The Neuromuscular Research Team enjoys engaging in many local events as well as hosting our own. Each year we organize and host a fundraiser to support our toy drive and to provide financial assistance to our families in need. Our community outreach includes participating in the annual Muscular Dystrophy Association (MDA) walks and donating toys to over 65 campers at the annual MDA summer camp. You will also see our team presenting on various clinical research topics at conferences hosted by the MDA, Parent Project Muscular Dystrophy (PPMD) and the JETT Foundation.

Upcoming

Crowdfunding Fundraiser!

The Neuromuscular Research Lab Crowdfund for equipment to enhance our research lab is now closed! Thank you to everyone who donated.

Crowdfund overview: We serve patients with limited mobility requiring wheelchairs. Having a large research portfolio, many of our patients require their weight measured safely and accurately.  Obtaining our own lift scale would allow us to be a more self-sufficient lab, as well as be more patient friendly.  Currently, staff and patients will need to travel from the 3rd floor to the 1st floor clinic area to obtain a weight. The clinic lift scale is located in a commonly used hallway and we need to coordinate when it is convenient for clinic operations. Having our own lift scale will allow for patient visits to be shorter and more private.

Thank you to all of our Ruby, Sapphire and Diamond donors!!

  • Erica Keller
  • Catherine Keller
  • Michelle Tovar
  • Jill Lancaster
  • Michael Muth
  • Sharon Shiraishi
  • Susie Cummings
  • Omaid Sarwary
  • Carsen Anthonisen
  • Miguel Borrego
  • Nadir and Mayana Sarwary
  • Donald Torretto
  • Kristen Brockman
  • Candace Aguilar
  • Lorraine Schexnayder
  • Eva Lee
  • Folsom Lake Toyota
  • Alina Nicorici
  • Tunde Gyurics
  • Susan Ellis
  • Eric Goude
  • Michelle Torretto
  • Sarepta Therapeutics 
  • UC Davis PM&R Outpatient Therapies

Past Events

Although we didn't have our traditional annual Halloween party due to COVID-19, we had a great time giving our patients bags of candy and toys as they came in for research appointments in the month of October, and of course dressing up on Halloween! This year our theme was "under the sea". 

PPMD hosted their 3rd annual Duchenne Healthcare Professionals’ Summit in San Diego, CA. This event allowed our team to collaborate with other Duchenne Healthcare Professionals by sharing information and learning from one another. We were able to share case studies, data, and personal experiences to further lessen the gaps in knowledge about Duchenne care.

Our Research Lab had our 9th Annual Halloween Party. We would like to thank all our patients, families, community, and services that help our research. Our event had a great turn out and we look forward to next year’s Halloween party!

Our Research Lab donated a variety of toys to MDA Camp for the 10th year in a row. Toys included MDA Camp is hosted every summer where kids with Muscular Dystrophy and related diseases are able to spend a week doing outdoor activities and building friendships.

 

Our local Power Soccer team achieved the opportunity to participate in the US Power Soccer National Championship games. The team won a total of 5 games and had a great time playing. Congratulations to the Sacramento Valley Flames!

Our Unwind with a Glass of Wine fundraiser was a major success and we couldn’t have accomplished this without the support of our amazing community!! Thank you to all who attended, sponsored, or donated to our Fundraiser. The proceeds of this event will go towards the UC Davis Health Neuromuscular Research Lab, allowing us to purchase toys for children and provide financial relief for MDA families. If you didn’t get a chance to make it this year, please return to this page for details of our next fundraiser.

MDA of Northern California hosted their yearly walk on April 28th, 2019. The MDA Walk is an awesome opportunity to meet families and raise money towards the MDA community. Our Research Team set up a booth where we handed out fliers about our numerous clinical trials and offered prizes to the children.